“You matter because you are you, and you matter to the end of your life.”
Dame Cicely Saunders, founder of the modern hospice movement
The CQC has announced its support of The Every Moment Counts publication, a narrative which aims to describe some of the critical outcomes and success factors relating to end of life care, support and treatment, from the perspective of the people who need that care, and their carers and families. The narrative was published on Monday 2nd March by National Voices, the National Council for Palliative Care and in partnership with NHS England.
As part of this narrative, five themes have been identified as key when providing coordinated care near the end of life. These themes are summarised in the defining statement:
“I can make the last stage of my life as good as possible because everyone works together confidently, honestly and consistently to help me and the people who are important to me, including my carer(s).”
In addition to this statement, others which aim to detail the person centred care and support expected by those near the end of life include:
“I have timely and honest conversations with those engaged in my care, support and treatment.”
“I can remain in control as much as possible. This is recognised as a key goal in my care.”
“I am confident that the people who are important to me will have the opportunity to get support with bereavement before and after my death.”
“Things that need to happen, do so quickly.”
Professor Sir Mike Richards, Chief Inspector of Hospitals, Care Quality Commission (CQC), said:
“CQC fully supports the narrative for person centred End of Life Care, which clearly articulates the quality of care which everyone should be able to expect at the end of their life. We are using the narrative in our thematic review of inequalities and variation in End of Life Care to describe what good care looks like, so that we can understand why people’s experience of End of Life Care often falls short of this.”
The Every Moment Counts publication can be viewed here.